At MSU, we are patients and care partners. We started with providing support and have evolved to creating a family. Join our family for myositis patient and caregiver groups, Zoom support, and Clubhouse rooms. Through education, support, awareness, advocacy need-based financial assistance, and access to research, we empower the myositis community. You are not alone in this journey.
Myositis is a rare disease that involves inflammation of the muscles. This can present with a variety of symptoms such as skin involvement (i.e., rashes), muscle weakness, and other organ involvement. Systemic symptoms such as weight loss, fatigue, and low fever can also present
The Idiopathic Inflammatory Myopathies (IIM), which are generally referred to as myositis, is a group of rare, acquired (not inherited), incurable, systemic autoimmune diseases. While Myositis is classified as a muscle disease, it can also affect the heart, lungs, skin, and GI tract, and can be associated with cancer
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Every year we take pride in our featured event called "The Empower Walk" where we bring more awareness to myositis and gather our family/community to connect, share and support one another. This event takes place in Henderson, Nevada and is an in person and virtual event. We create a new theme for every year and have fun with costumes, games and prizes for all.
We hope to see you at this year's event!
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