There are a variety of resources and tools that can help myositis patients who are no longer able to work, able to work but require accommodations, need to file for Social Security Disability, and many others. Also, knowing your rights as a person with a disability is important and we have provided some information about The Americans with Disabilities Act (ADA).
Disability for some with myositis is the requirement of a mobility device such as a cane, walker, rollator, wheelchair, or power chair. Some may require a wheel-or-power chair at all times, while others may be “ambulatory” wheelchair users. No matter which, the resources for traveling with a disability are the same and we have provided resources below.
Others with myositis may require oxygen due to lung disease, medications, and medical supplies for feeding tubes.
The Americans with Disabilities Act of 1990 (ADA) prohibits discrimination and ensures equal opportunity for persons with disabilities in employment, State and local government services, public accommodations, commercial facilities, and transportation. It also mandates the establishment of TDD/telephone relay services. View the ADA and amendments.
Search for practical information about securing employment, job accommodations, employment rights of people with disabilities and more.
A service of the U.S. Department of Labor’s Office of Disability Employment Policy that offers comprehensive resources for workplace accommodations.
An agency of the U.S. Department of Labor and the site includes a ton of helpful information.
How to choose a wheelchair, scooter, and home accessibility solutions.
This is an independent website that offers information about types of wheelchairs, wheelchair maintenance and resources for those who use wheelchairs.
NMEDA provides adaptive transportation solutions for you, your family and caregivers. NMEDA Dealer Members provide independence and the ability to get behind the wheel through mobile technology. With equipment installed by a dealer who participates in NMEDA’s Quality Assurance Program (QAP™), a wheelchair accessible or modified van, truck or car can provide the assurance you need to feel confident and secure on the road once more.
Focused on technology and disability, RESNA promotes research and development of assistive technology, education, advocacy and the provision of assistive technology devices for people with disabilities.
Created by the RERC on Wheeled Mobility at the University of Pittsburgh, this site contains a lot of information about purchasing and using a wheelchair.
Developed by the National Council on Aging, this site connects older adults with information about a wide range of benefits programs, including assistance with prescription drugs, health care, rent, utilities, transportation and more.
A federal website providing quick and easy access to information and resources designed to help people with disabilities lead full and independent lives.
Find your local social security office
An agency of the U.S. Department of Labor and the site includes a ton of helpful information.
The official website of the Social Security Administration (SSA).
SSDI provides benefits to individuals with disabilities (and certain family members) who have worked long enough and paid Social Security taxes. Find the SSA office serving your area.
The website to apply for Social Security Disability Insurance.
Find the SSA office serving your area.
Administration for Community Living – Through its Eldercare Locator, this agency helps individuals find local resources that can help older people and their families access home and community-based services such as transportation, meals, home care, caregiver support services and much more.
Private, nonprofit agencies offering services aimed at maximizing the independence of people with disabilities. Services vary by location, but often include independent living skills training, as well as information and referrals.
NCIL advances independent living and rights of people with disabilities through consumer-driven advocacy. NCIL’s website contains a wide range of helpful resources.
The official website for Medicare and Medicaid services.
If you’re a U.S. military veteran, learn about medical benefits for which you may be eligible. Also, see more Veterans Resources here.
State-administered programs designed to ensure that certain low-income individuals receive the health care they need. Each state sets its own guidelines for eligibility and covered benefits.
The official U.S. site for people eligible for and/or covered by Medicare.
A national, nonprofit organization working to help individuals navigate the complexities of Medicare through web-based education, Medicare counselors, e-newsletters and resource referrals.
Learn about state programs that help Medicare beneficiaries with limited income and resources save money on Medicare premiums, deductibles and/or co-pays.
State offices provide information about choosing Medicare plans, understanding your Medicare bills, how to appeal Medicare decisions and more.
Many states have SPAPs that help eligible individuals pay for prescription medications based on financial need, age or medical condition. Each SPAP establishes its own eligibility and coverage criteria. To learn about the SPAP in your state, contact your State Health Insurance Assistance Program.
The Air Carrier Access Act prohibits discrimination on the basis of disability in air travel and requires air carriers to accommodate the needs of passengers with disabilities. There are also many other resources on the website this link takes you to.
Sponsored by the U.S. Department of Transportation to provide general information about rights of air travelers with disabilities and assist air travelers with disability-related issues.
Contact your state’s Department of Motor Vehicles to obtain a permit to park in designated accessible parking spots, which will help you avoid fatigue from having to traverse long distances in parking lots.
Project ACTION was created to promote universal access to transportation for people with disabilities under federal law and beyond by partnering with transportation providers, the disability community and others through the provision of training, technical assistance, applied research, outreach, and communication.
Learn about air travel security procedures for people with disabilities and medical conditions.
Learn about international travel with a disability from the U.S. Department of State.
Some helpful websites about traveling with oxygen.